It’s not obvious to the rest of the world what’s really going on with my son. This is what it’s like when your child has hidden special needs. I could feel it. The other parents staring. Their glances back and forth, between my sweet son, me and then each other. My youngest just started gymnastics….
Before you judge a special needs parent, please consider the other 23 hours of the day you are not seeing. I stood in line, worried about my youngest’s increasing irritability, hoping we could just buy the frame and get out of the store. Normally, I would never (and I repeat, never) bring both of my…
The decision to homeschool my child with special needs was not an easy one. But I am so glad I made it. I used to be extremely opposed, super judgy, uninformed and militantly against homeschooling. (I was once so rude and condescending to a homeschooling mom at the park that I wish I could go…
This is what it’s like when you realize you absolutely can’t control it all, even when it feels like you need to. When your child is first diagnosed, the doctors are always focused on the proposed treatment plan. Rightly so. It’s what they do, post assessment. I recommend therapy a minimum of two times a…
I have been asked it more times than I can count. Does my child need these interventions? A couple of years ago, I shared that we were getting a psychiatric service dog for my then 11-year-old son. I have openly shared the different therapies and interventions we employ for both my sweet boys. For six years,…
We are headed into more waiting rooms this week. I try to plan for the time – bringing a book and some work to get done while I wait. But I know there’s no way I will accomplish much. If you’ve been the mom in the waiting room, you know. It’s hard to concentrate. It’s hard to…
“Now, I don’t want you to worry. Not yet. These results can mean any number of things.” When the doctor starts out with “I don’t want you to worry,” the first thing you do is worry. It has been a year since we got back test results that revealed my son had something wrong…
It may seem obvious, but I am learning that special needs interventions and treatments don’t happen in a vacuum. We went on a road trip for the first time in years, last week. It was only one night and only a four-hour drive. We had all the things packed to make it a bit easier…
Finding school options for children with special needs is an almost constant struggle for many families. “Your son is very sweet,” the other mom said gently to me, nodding at him as he walked away. My son was heading back for his therapy appointment. Her son was already in his, so the two of us…
I am asked this question all the time. “My husband doesn’t believe my child’s diagnosis is real. What do I do?” I have been thinking about writing this post for years. I am asked this question several times a month and see it in the search history reports showing what brings women to my site….
My son woke up at 3:30 this morning, his brain ready for the day. He called me in and immediately began talking about chameleons – their habitats, their care in captivity, their coloring, about all the things chameleon. My eyes were barely open. 3:30 AM came way too soon. And through the groggy haze, I…
Every mom I know has said it at one point or another – I just want to get this right for my child. Yesterday, my son’s doctor told me it was time to make a decision. He continues to lose way too much weight. His antibodies are getting lower and lower. The trend is not…
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