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Our “Special Needs” Marriage – The Good, The Bad, And The Ugly

Why is he doing this?” my husband yelled, in evident frustration, after seeing another hole punched into the wall, and scattered remains of the bookcase on the bedroom floor.

I think it might be because he has autism,” I answered sarcastically (because, you know, I’m super gracious like that).

This marriage thing…it’s not for the faint of heart. Add a little High Functioning Autism with some Acute Sensory Processing Disorder on the side? Well, let’s just say it gets ugly.

I love my husband. He loves me – so much in fact that I have already felt compelled to write a couple of posts about how awesome and cool he is. And he is. Seriously.

And, the reality is that we are two human beings, sinning all over the place, and all over each other all of the time. Of course it’s a marital disaster around here, sometimes more often than not.

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So in the interest of balanced disclosure, allow me to share some of the crazy that is just part of us being married while parenting two “special” kids.

1. We Blame Each Other… A Lot

It’s kinda weird, but true. I know for a fact my husband is not the reason my kids are who they are (I can’t even hold him genetically responsible), but that doesn’t stop me from blaming him for not somehow making it better. We have had entire, long, drawn out arguments over me thinking if he would just fix his work schedule or have a plan for the weekend, then everything would be fine. Seriously. I do this. Too often.

I am not alone. He blames me too. Usually because he thinks I am somehow not parenting the boys well enough to overcome their challenges (even though logically he knows it is impossible to do). For example, a couple of weeks ago, Mick said to me that he feels like he can’t leave the house without things getting crazy (I being the astute reader of all things between the lines took this to mean he thought I wasn’t doing a good enough job with managing the boys). I believe my response was a sarcastic, “Oh really? ‘Cause it’s so much better when you are here? Face it. Our life is crazy. It’s crazy with you. It’s crazy without you. Pick any day. It’s crazy!

Not good.

What is good, and has helped us recover quickly from these types of situations is to take some time to calm down. We try to never fight in front of the boys. They have enough stress. They do not need us to add to it. Taking time to “fight later” when they are in bed or otherwise occupied, also has the benefit of allowing us to both calm down and really think about what is going on. Most of the time, one or both of us come back into the conversation with a little more grace for the other, and we can work it out from there.

2. I Totally Think He Doesn’t Get It

I am being completely honest here. One of the things that affects our marriage is my pride. Ugh.  I hate writing that, but it’s true.

My husband wants my respect. And the truth is, I really do respect him. I respect him, and all too often I also think that he just doesn’t really get this whole autism thing, or staying at home with kids all day thing, or how to help a dyslexic boy learn to read thing. Because of this lie, I often dismiss or downplay his perspective in parenting our boys. This causes all kinds of mess. It creates distance in our marriage. It makes him feel like he really isn’t capable (even though he totally is) in parenting our boys. And I miss out on having a different perspective when I desperately need one.

He has offered some of the best insights as to how to connect with my oldest son and his special interests. He has inspired my youngest, to see all of his gifts and not just the fact that his brain struggles to read. Most importantly, he has done this in ways that I never would have done or even thought useful at the time.

So, I am wrong. He does get it. He gets it in his daddy way, which is different but no less good than my mommy way.

3. We Are So Sleep Deprived

Nothing creates an environment for marital strife in my opinion like not sleeping well for a few years. This goes without saying, but seriously, it matters. If affects the way we interact with the boys and even more so with each other. Our worst fights have been in seasons where we were getting a maximum of eight hours a sleep a night between the two of us.

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I wish we would give ourselves and each other more grace because of this . There are times I want to say maybe we should stop talking about this and go sleep for a few days and then see how we feel..but then duty calls, sometimes all night long. And that’s just how it is.

I am grateful that when the boys do leave for visits with their dad, we purpose to lighten the load at home and work. We sleep a little later, eat out or fix really basic meals, and use the time to recharge, reconnect, and to actually sleep.

4. We Have Had To Learn To Be On The Same Team

We do not always act this way, but we are learning that two people fighting the good fight together, instead of at one another, is by far a better way to live. We sometimes have to remind the other that we are on the same team, that we are working towards the same goals, that we both want this to be a success. It seems odd that we need to, but we do.

It helps to remember that God brought us together for a reason. He made us husband and wife and gave us these unique little guys with a purpose. That matters to us. It is meaningful in the moment. It takes our eyes off each other and fixes them on the things above, where the view is so much better.

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I love this man. I love our marriage. It is good. It can also be bad. It can also be ugly.

Special needs or not, what marriage isn’t?


Our Special Needs Marriage_ The good,

 

 

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17 Comments

  1. So I think you might have just described my marriage, not yours! Thank you for making me laugh and for being so honest.

  2. I feel bad that your son does stuff like that
    It must be really hard.
    Good luck to you and your husband.

    1. Thank you. I included the story about my son because it is just part of our reality. It is hard, but it is not an every day occurrence any more (thank you Lord!).
      I appreciate your concern and well wishes.
      Shawna

  3. Ok where do I begin? First, this is a description of my marriage! 🙂 I think, special needs children or not, these are true and real issues that every husband and wife share. Now that I am a part of your new club (lol), I think these issues are magnified by 1000. So thank you for being so honest and articulate about this topic.
    Second, I’m pretty sure that you are doing pose we did in Talent Showase in that last picture! No?!? Oh yes, the “tall girls in the back row” pose…love you. 2 1/2 more days to pure heaven…

  4. Its been such a blessing to watch you guys learn to love deeply theoughout your “crazy” life . Both of your love and grace inspire me

    1. You are so sweet to me! Only by God’s grace can Mick and I claim any of this – you know that better than anyone. 🙂
      Love you,
      Shawna

  5. It is nice that your husband is sharing this journey with you. My daughter’s father left the picture for the most part due to the challenges of her autism. I then remarried and after a few years he decided it was too much as well. We eventually reconciled but I try to keep them apart because if he leaves again she will lose her much needed insurance. A sad situation.

    1. Dee, I am so sorry to hear this. I can understand the hurt and the stress…my boys dad lives in a different state and has struggled with their diagnoses as well.
      Praying for you, your daughter, and your marriage this morning.
      Love,
      Shawna

  6. We have so many “discussions” trying to discern whether any particular behavior is autism related or just six year old boy not getting his way related. This, like just about every other blog entry you write, is do relevant. Thanks for doing so much reflecting for me.

    1. We have those “discussions” All.The.Time. I think it is just part of this…I am just as glad to hear I am not alone.
      Thank you.
      Love,
      Shawna

  7. This is such a true post. I love it!! My wife and I have a 15 and 11 year old with ASD and the Autism Circus is three rings of crazy!! You are an inspiration and thank you for sharing the struggle.

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