When You Realize You Absolutely Can’t Control It All
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When You Realize You Absolutely Can’t Control It All

This is what it’s like when you realize you absolutely can’t control it all, even when it feels like you need to.  When your child is first diagnosed, the doctors are always focused on the proposed treatment plan. Rightly so. It’s what they do, post assessment. I recommend therapy a minimum of two times a…

What I Learned When My Son Used A Wheel Chair
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What I Learned When My Son Used A Wheel Chair

The day I ordered my son’s wheelchair was not a good one. Just pressing the “ship now” button made my heart hurt. After years of autism therapies and anxiety medications. After years of doctor’s appointments and educational evaluations. After years of learning everything possible about his sensory system and urgent need for tactile input. After…

This Is What Happens When Your Child Has Both Medical And Behavioral Health Diagnoses
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This Is What Happens When Your Child Has Both Medical And Behavioral Health Diagnoses

I hung up the phone and felt a familiar sense of dread. “We have a diagnosis. It explains everything and I am so sorry it took us all so long to figure it out for him,” the doctor had said. I could hear my son in the other room and tried to talk myself calm. …

Why “This Too Shall Pass” Is Not Helpful For A Special Needs Mom
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Why “This Too Shall Pass” Is Not Helpful For A Special Needs Mom

It has been a few years now, since my son received his chronic illness diagnosis. I remember all the research the doctor referenced. The higher risk of lymphoma, the decreased life expectancy, the recommendation for a wheel chair. It is all seared into my brain, plain as day. It has been a few years now,…